Millions of young people could miss out on future treatments because so few take part in medical research, experts warn.
New data shows 18- to 24-year-olds make up 8% of England’s population but only 4.4% of research participants, meaning new medicines may be designed mainly for older adults.
“Young people face unique health challenges shaped by life transitions and social pressures,” said Kirsty Blenkins of the Association for Young People’s Health. “If treatments aren’t tested on them, they may not be safe or effective.”
Barriers include a lack of awareness, limited recruitment, and confidentiality concerns. Dr Esther Mukuka of the NIHR urged young adults to get involved, noting that research “shapes how we manage everyday conditions like diabetes and mental health.”
The NIHR is running a campaign to boost participation through a national volunteer registry, allowing anyone to join studies that match their health or interests.
Experts also warned that women and ethnic minorities remain underrepresented, risking treatments that fail to address key inequalities in healthcare.

